A family's struggle with health insurance has led to a push for change in state law. The daughter, who has a rare condition affecting the brain, requires regular treatments to manage her disease. Despite this, the insurance company has denied coverage, leaving the family with significant expenses.

The family's experience with their insurance provider has been lengthy and frustrating, with repeated denials over several months. This has taken a toll on the daughter, who is unable to attend school due to her condition.

Further details about the family's situation and their efforts to bring about change are available from the source.